WORLD RARE DISEASE DAY: MORE THAN YOU CAN IMAGINE
Rare diseases are a phenomenon that has relevance although it has very low incidence . Across the globe, occurrence was estimated to be 3.5–5.9% of the world’s population, which corresponds to 263 to 446 million people worldwide based on 3,585 rare diseases. small percentage of the population, but their impact is anything but small. They can be chronic, progressive, debilitating, and even life-threatening. The lack of awareness, understanding, and resources exacerbates the challenges faced by those affected. Despite the advancements in medical science, rare diseases remain a neglected area of research. The limited availability of funding, the scarcity of experts, and the lack of data hinder the development of effective treatments. Patients and families are often left to navigate a complex and fragmented healthcare system, searching for answers that seem elusive. However, amidst the challenges, there is hope. The rare disease community is a testament to the power of resilience, advocacy, and solidarity. Patients, families, and caregivers have become vocal advocates, pushing for policy changes, increased funding, and accelerated research.
World Rare Disease Day, reflects on the courage and determination of those affected by rare diseases. It highlights the importance of continued research, improved diagnosis, and enhanced patient care. Most importantly, we acknowledge that rare diseases are not rare when considered collectively. They affect millions of people worldwide, and it’s time we come together to make a difference. One can make a difference by creating awareness to individuals around on the need to acknowledge the existence of these diseases even though it is not common.
Always prioritize your health and well-being.
Rx Iruoma Goldy Ani